Monday, June 30, 2025

Book Review - The Sound of a Miracle.

Book Review.




"The Sound of Miracle" is an autobiographical story that's indeed miraculous. It's a story of a mother whose first born gets detected with leukemia and the second one with autism. Her fight with circumstance and with determination to give children a life with dignity is an inspiration to every parent. The endless rounds to one hospital for blood transfusion and another to deal with autism is untiring, you always wonder how a mother can get so much strength and fight with the system and with herself to understand and find ways for her children to be happy. In the 1970s the medical science did not have the kind of advancement and understanding of Leukemia (even to this day it is not). When going gets tough it becomes more complicated and tougher.. I have seen in many cases when parents are struggling to deal with an ailing child one parent, most often the father, gives away and moves out instead of helping deal with the situation. The same happens with Annabel Stelhi, the author, and her husband and the father of two angels moves out and eventually they get divorced. It also amazes me that under such situations how children grow up and behave so maturely. Dotsie, the elder girl who is diagnosed with leukemia at the age of four takes up some responsibilities at home and comforts her mother while dealing with her own illness that she doesn't understand much about. After four years of treatment of terminal disease she never shows a sign of pain to bother her mother and peacefully goes away soon after celebrating her 8th birthday in the hospital ward with her suffering friends where she saw some other children her age passing away.

 Just a few months before Dotsie's death god shows some kindness and Anna is introduced to a kind person who she later marries her. He is also a divorcee having three children but they don't live with the protagonist. He shares her worries and genuinely loves her. As luck would have it Peter, the new husband, gets a job in Geneva and the three of them move to Switzerland where they meet a doctor who refers Georgina, the child who is autistic and gone through a lot of different treatment without much progress, although she is high functioning, to an audiologist. 

That was a game changer.. that doctor is a researcher and had developed a unique audio treatment with which he had treated some autistic children successfully. Autism as we understand is not a disease but a condition that never goes away. They are neurodiverent with certain characteristics. Only some training makes children overcome some of the disabilities and make them independent to some extent, that also varies from children to children and that's why autism is a spectrum. From high functioning on one end to the low functioning on the other where often you need constant support. Dr Guy Berard, the audiologist administered his audiology treatment and the results were amazing. In just 10 weeks it changed Georgie's life. He trained her to listen to certain frequencies and filtered out some others that used to bother her. No one believed the improvements in Georgie and some people started questioning if she was autistic in the first place. Well to cut the story short, Georgies does well at schools when the family moves back to the US and then graduates from a university with flying colours. She becomes a topic of research herself but only after she has graduated  and that's when Annabel writes this autobiography and establishes a non profit Gerogiana Institute to help people who are neurodivergent.

It's the whole system that is responsible for such miraculous healing but you need to be lucky to have the right sequence and circumstances when the right things happen by meeting the right people and in this case doctors. Georgiana and Annabel are inspiring examples who show how to WIN life. Salute to them. 

June 2025.

Book Courtesy Action For Autism, National Centre for Autism Library.

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